No parent should ever have to decide if they can afford to save their child’s life. It just shouldn’t happen. Not here.
Nearly 10 million people have heard this emotional plea from the tearful monologue on Monday night’s “Jimmy Kimmel Live.” Kimmel opened the show with an emotional retelling of the birth of his son, Billy, on April 21. After a nurse noticed that the newborn was turning purple, doctors detected a heart murmur and tests revealed that oxygen was insufficiently reaching the rest of his body. Kimmel described the chaotic and terrifying scene that followed as doctors and nurses filled in, surrounding Billy with a sort of frenzied focus. Eventually, Kimmel learned that his son was born with a heart disease and would require immediate surgery.
Billy was diagnosed with Tetralogy of Fallot, a four-part heart defect that includes a ventricular septal defect, or a hole between the ventricles that allows mixing of oxygenated and deoxygenated blood to be pumped throughout the body. After sharing that the emergency, three-hour surgery was a success, Kimmel taught us why we cannot look away from the health care battle. This story provides context to American’s fraught response to the Republican’s debate over scaling back Obamacare’s preexisting conditions clause. This clause requires insurers to offer coverage to everyone who can pay for it and protects sicker individuals from being subjected to astronomically high premiums, as Kimmel explains:
Before 2014, if you were born with congenital heart disease like my son was, there was a good chance you would never be able to get health insurance because you had a preexisting condition…you might not even live long enough to get denied because of a preexisting condition.
The most recent changes to President Trump’s health care bill include an amendment by Rep. Tom MacArthur that would allow states to get waivers that allow insurers to set prices based on how healthy a person is. That is, coverage for those with preexisting conditions would become largely unaffordable and force those individuals to seek new coverage in high-risk pools. The bill would set aside money to subsidize these pools, but experts agree that the subsidies aren’t nearly enough to cover those new costs.
What is the potential impact of this change? Nearly 52 million people, or one quarter of adults under the age of 65, have preexisting conditions whose coverage would be in jeopardy if their state was granted this waiver. Not to mention that radically interfering with balance in the marketplace would lead to expensive and less effective delivery of care. (For a simple, cartoon explanation of this phenomenon, refer to this Vox article.)
This is an important distinction to make from Trump’s recent (false) claims that adequate and fair coverage of preexisting conditions “has to be” and is indeed in the new health care bill. Though a tough sell would await the bill in the Senate, it appears as though the new bill will go for a vote in the House later today.
Here is what else the proposed health care bill would change. It would:
- repeal the individual and employer mandate
- remove subsidies for out-of-pocket expenses that are used to pay deductibles and make co-pays in 2020
- roll back tax increases on high incomes, prescription drugs, medical devices and tanning salons
- cut federal funding for Medicaid expansion in 2020
- allow states to waive essential benefit rules that include maternity care, emergency visits and preventative services
- allow insurers to charge older customers five times as much as younger ones
- change premium subsidies from income- and location-based to a rudimentary age-based subsidy
As we mentioned in our podcast, advocacy’s willpower at town halls and in the inboxes of elected officials forced responsible action on the American Health Care Act. Moreover, it reminded Washington that its constituents realize what they stand to lose with irresponsible health policy. As the vote nears, Kimmel reminds us that we can all agree on one thing:
If your baby is going to die, it shouldn’t matter how much money you make. Whatever your party, whatever you believe, whoever you support, we need to make sure that the people who are supposed to represent us, the people who are meeting about this right now in Washington, understand that very clearly. Let’s stop with the nonsense. This isn’t football. There are no teams. We are the team. It’s the United States. Don’t let their partisan squabbles divide us on something every decent person wants. We need to take care of each other.
Image: Jimmy Kimmel